http://sct.screening.nhs.uk/ Latest news from the NHS Sickle Cell & Thalassaemia Screening Programme News 2008 National Screening Committee The SCT programme has been short listed for the regional finals of the health and social care awards in the category improving health and reducing inequalities! The Health and Social Care Awards are opportunity to thank NHS and social care colleagues who work tirelessly throughout year to provide innovative and high-quality care and support. Over 200 nominations from London were received for the 2009 awards, highlighting the wealth of expertise, commitment and compassion that exists at all levels. List of winners and finalists About the awards Copy of the awards brochure Photographs from the evening will be available next week http://sct.screening.nhs.uk/news.php?id=10868 Thu, 28 May 2009 12:55:00 +0000 Invitation to Tender for Developing and Embedding into mainstream Higher Education the PEGASUS Specialist Course for counselling for the linked antenatal and newborn screening programme specifically including andldquo;at riskandrdquo; couples Information Pack http://sct.screening.nhs.uk/news.php?id=10873 Tue, 28 Apr 2009 09:39:00 +0000 Letter clarifying the funding arrangements for pre-natal diagnostic testing for haemoglobinopathies. The costs of analysis of samples by specialist genetic centres is not in the national tariff and, therefore, must be funded by PCTs. Author: Department of Health 2 Sep 2009 http://sct.screening.nhs.uk/news.php?id=10964 Tue, 15 Sep 2009 11:09:00 +0000 Edition 2 October 2009 http://sct.screening.nhs.uk/news.php?id=10980 Mon, 26 Oct 2009 15:42:00 +0000 The NHS Sickle Cell and Thalassaemia Screening Programme formally announced today that it has achieved 100 percent roll-out of its antenatal screening programme in England. As a result of this programme, all women receiving antenatal care in England will be offered screening for the serious genetic diseases sickle cell and thalassaemia. Press release http://sct.screening.nhs.uk/news.php?id=10814 Wed, 01 Apr 2009 14:01:00 +0000 This definition is part of the third edition of the Specialised Services National Definitions Set (SSNDS) being produced over 2008/9. The SSDNS was last edited in 2002. During 2008/9 each of the 35 definitions in the second edition of the SSNDS will be updated; in addition three new definitions will be added to the Set. Specialised Haemoglobinopathy Services (all ages) - Definition No. 38 OPCS codes for Definition 38. Specialised Haemoglobinopathy Services (all ages) http://sct.screening.nhs.uk/news.php?id=10816 Wed, 01 Apr 2009 14:00:00 +0000 A moving story of the emotional journey one family makes when their baby is born with sickle cell disease. The story is drawn from the real life experiences of people living with sickle cell disease and their carers. The Family Legacy http://sct.screening.nhs.uk/news.php?id=10820 Wed, 01 Apr 2009 14:23:00 +0000 All children and young adults with sickle cell anaemia (Hb SS) and HbS andszlig; zero thalassaemia, should be offered annual TCD scans from age 2 years until at least age 16 years. The need for children with other types of sickle cell disease to be screened should be reviewed on a case by case basis. Standards and Guidance (March 2009) http://sct.screening.nhs.uk/news.php?id=10840 Sat, 04 Apr 2009 10:24:00 +0000 What is sickle cell disease? How do people get sickle cell disease? Why should I think about being tested? What is beta thalassaemia major? How do people get beta thalassaemia major? Why should I think about being tested for beta thalassaemia major? http://sct.screening.nhs.uk/news.php?id=10895 Wed, 13 May 2009 17:19:00 +0000 The Programme Centre is delighted to announce that the recent tender process has resulted in Guys and St Thomas's Hospital NHS Foundation Trust and Kings College Hospital NHS Foundation Trust being the successful tenderers. Both and are now going through the post-tender negotiating process to address any points in the tender that require clarification, prior to the formal award of contracts. Procurements http://sct.screening.nhs.uk/news.php?id=10905 Wed, 20 May 2009 13:52:00 +0000 The NHS Sickle Cell andamp; Thalassaemia Screening Programme is extending the use of the Family Origin Questionnaire (FOQ) to all High Prevalence Trusts in England More information... http://sct.screening.nhs.uk/news.php?id=10923 Fri, 21 Aug 2009 09:55:00 +0000 Strength to strength - preconception and care : June 2009 http://sct.screening.nhs.uk/news.php?id=10929 Thu, 11 Jun 2009 13:58:00 +0000 Executive Summary by Valerie Musson and Jill Rogers (June 2009) http://sct.screening.nhs.uk/news.php?id=10944 Thu, 09 Jul 2009 19:05:00 +0000 Report by Valerie Musson and Jill RogersJune 2009 http://sct.screening.nhs.uk/news.php?id=10948 Thu, 09 Jul 2009 19:05:00 +0000 Guidance from the NHS Sickle Cell andamp; Thalassaemia Screening Programme Centre regarding DNA screening for transfused babies. http://sct.screening.nhs.uk/news.php?id=10978 Tue, 29 Sep 2009 12:14:00 +0000 A carol concert to celebrate the 30th Anniversary of the Sickle Cell Society, Saturday, 12 Dec 2009. This is a charitable concert organised by the NHS Sickle Cell and Thalassaemia Screening Programmeandrsquo;s Communications Consultant, Liz Aram, and all proceeds will be donated to supporting the Sickle Cell Societyandrsquo;s valuable work. http://sct.screening.nhs.uk/news.php?id=10983 Fri, 13 Nov 2009 16:56:00 +0000 The data presented in this report show that 359 babies were identified with screen positive results for a clinically significant condition in 2007/08, suggesting that overall, sickle cell disease is more common than cystic fibrosis in England. Affected infants have been detected in every Strategic Health Authority (SHA) in England. http://sct.screening.nhs.uk/news.php?id=10989 Tue, 24 Nov 2009 15:02:00 +0000