Standards and guidelines

Published in October 2010, the second edition of this document sets out standards and guidelines for clinical care and... more »

Published in October 2010, the second edition of this document sets out standards and guidelines for clinical care and recommendations for how care for children with sickle cell disease should be delivered. 

The original standards and guidelines document was published as an "executive summary" in September 2006; detailed guidance and references were available only on the web. This document has now been revised to take account of updated information, and to incorporate relevant information from the detailed guidance along with other documents so that it is more comprehensive and should serve a wider readership.

It includes a number of specific revisions (listed on page 5 of the document).

This incorporates: Background to the haemoglobinopathies Sickle cell disorders General screening policy ... more »

This incorporates:

• Background to the haemoglobinopathies
• Sickle cell disorders
• General screening policy
• Newborn Screening
• Antenatal screening
• Referral of samples for DNA analysis
• Procurement Details

September 2009

Standards and Guidance (March 2009) All children and young adults with sickle cell anaemia (Hb SS) and HbS ß... more »

Standards and Guidance (March 2009)

All children and young adults with sickle cell anaemia (Hb SS) and HbS ß zero thalassaemia, should be offered annual TCD scans from age 2 years until at least age 16 years. The need for children with other types of sickle cell disease to be screened should be reviewed on a case by case basis.

Edition: October 2008 Hard copies available free of charge to health professionals, patients and carers. Please visit... more »

Edition: October 2008

Hard copies available free of charge to health professionals, patients and carers. Please visit the UKTS website for further information.

Published by the  Sickle Cell Society in 2008. Sickle Cell Disorders: Overview Organisation of Care and... more »

Published by the Sickle Cell Society in 2008.

• Sickle Cell Disorders: Overview
• Organisation of Care and Commissioning SCD Services
• Managing Acute Complications
• Managing Chronic Complications
• Pregnancy, Contraception and Fertility
• Blood Transfusion
• Surgery and Specific Therapies

Endorsing the guidelines of the NHS Sickle Cell and Thalassaemia Screening Programme in relation to screening and... more »

Endorsing the guidelines of the NHS Sickle Cell and Thalassaemia Screening Programme in relation to screening and diagnosis of significant haemoglobinopathies, this includes recommendations for appropriate issuing of national haemoglobinapathy cards for affected, carrier and 'normal' individuals following haemoglobinopathy screening.

To access the guidelines, go to the BCSH site.