Standards 

Handbook for Laboratories

incorporating:

• Background to the haemoglobinopathies
• Sickle cell disorders
• General screening policy
• Newborn Screening
• Antenatal screening
• Referral of samples for DNA analysis
• Procurement Details

September 2009

TCD Scanning for Children with Sickle Cell Disease

Standards and Guidance (March 2009)

All children and young adults with sickle cell anaemia (Hb SS) and HbS ß zero thalassaemia, should be offered annual TCD scans from age 2 years until at least age 16 years. The need for children with other types of sickle cell disease to be screened should be reviewed on a case by case basis.

Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK

Edition: October 2008

Hard copies available free of charge to health professionals, patients and carers. Please visit UKTS for further information.

Tel: 020 8882 0011

email: office@ukts.org

Standards and guidelines for clinical care

Detailed guidance (Oct 2006)

This document provides a series of recommendations for the organisation of care and management of complications in childhood sickle cell disease. Detailed guidance including the rationale for intervention and supporting evidence is found in section 4.

Standards and guidelines for clinical care

Executive Summary (Sep 2006)

This document provides a summary of the standards and guidelines for clinical care and recommendations for how care for children with sickle cell disease should be delivered. In addition there is a comprehensive document which covers the rationale or intervention and the evidence on which the recommendations are based.

Standards for the linked Antenatal and Newborn Screening Programme

November 2006