Public

Welcome to the public site. Here we provide information about:

• sickle cell, thalassaemia and other haemoglobin disorders

  • What is sickle cell disease?	• Living with sickle cell disease
  • What is thalassaemia?	• Living with beta thalassaemia major
  • Other haemoglobin disorders	• What is a carrier?
  • How are sickle cell and thalassaemia passed on?	• How likely is that a child will inherit a haemoglobin disorder?
  • Who is at risk?	• Myths and misunderstandings

• screening in pregnancy, for newborn babies and at other times in life

  • Screening in pregnancy	• Further testing during pregnancy
  • Screening newborn babies • Newborn screening for thalassaemia	• How to get tested for sickle cell, thalassaemia or another haemoglobin variant?

We hope this information will help you to understand the choices you can make:

• about having a screening test

  • Why we offer screening?	• Who is offered screening and when?
  • Why should I think about being tested?	• Personal experiences of screening

• if your test is positive

  • Finding out you're a carrier	• If you and your partner are both carriers
  • If your child is a carrier	• If your child has a haemoglobin disorder

Publications

Translated information in other languages and formats

We welcome your views and suggestions for improving our public information.

Contact us  (email)